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"Hope for my Angel"

by Hope
(Ohio)

Dear Wray,
I was reading about your info on adding vitamin d3 with natural progesterone cream and I have some questions. I am also very supportive about "sunshine in a tube"!
This is a bit lengthy but thought you needed to have as much info as possible without writing a novel!!
Okay...My daughter is 34yrs old and is severely mentally and physically disabled. She functions at about a 2-3month old baby level, full care etc. She had a trauma...(accident)... at 5 days old and so I would say that she had a TBI even though way back then (1980) they only checked for a concussion and released her saying that she was fine. However, she started showing signs of not developing normally by 2months old and then by 4months old began having myoclonic jerks..."infantile spasms". I was able to keep her off seizure meds until she was 8yrs old when she was the victim of severe trauma while under the care of someone I trusted. She immediately began having Grand mal seizures and had to end up on depakote. Through the years had to be on different meds and combos of meds but as time went on she started regressing from being very lively, clapping her hands, said "mama", rolled all over the floor, could sit up on her own, ate really well, laughed all the time and was just a very happy little girl even though she was non-ambulatory. My sincere belief is that the seizure meds....NOT THE SEIZURES...caused her to slowly regress to the state she is at now. I have slowly weaned her off tegretol and as of 5 days ago she is no longer on any meds at all. Kinda risky yet I just know in my heart of hearts that she will be better off in the long run. LOTS OF PRAYING!!!!!! I want to use progesterone cream for her and also....after reading about the benefits of Vitamin d3...want to put her on that too. Her seizures are sparatic and has more at her post-menstrual time. I'm not real sure how much progesterone to give her or how often etc. She is very tiny...4'6", 80-85lbs. Also...since the vitamin d cream is not available yet can you suggest any products that are on the market?? I found one by "Now" foods that is a vitamin D3 cream 1000IU per 1/4 teaspoon. It also has vitamin A, E, aloe vera & shea butter in it. Do you know anything about this product? Do you think it would benefit her in order for the progesterone cream to work better? Do you know of any other d3 creams that are available and if so which would you recommend? Just so you know, I use Emerita Pro-gest cream. I just started giving it to her today because I'm sure that any given time that she will probably start having post-menstrual seizures and "med withdrawal seizures". I used aprox. 1/4 teaspoon on bot of her wrists/forearms this morning. I also use it myself for depression and anxiety ...it helps me ALOT!! I am post menapausal. Okay...I guess that's all for now and will look to hear from you about all of this!! Thanks You So Much!! You have a great site...very informative and because of it...I am much better because of using progesterone cream!! I can actually think clear and my nervousness, constant worrying, anxiety and depression are all so much more managable.
Thanks again for your "fantastic" web site!! God Bless You!! Will hope to hear from you soon!! Sincerely, "Hope"

Comments for "Hope for my Angel"

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Dec 14, 2014
 "Hope for my Angel"
by: Wray

Hi Hope You're so courageous looking after your daughter for so long, many would have put her in a home. We do have a page on Epilepsy you could look through. I'm glad you've taken her off the meds, but as you say it is risky. To take the risk out of it, you could consider putting her on a ketogenic diet. It stops seizures, but it's a very difficult diet. Unless your daughter likes drinking things. In it's strictest form the Keto Diet is very difficult to adhere to. This is usually only used for people with epilepsy and cancer. It reduces glucose levels to the barest minimum, and the body uses ketones for energy. It's a very high fat, moderate to low protein and very low carb diet. Only the good fats should be used, i.e. MCT oil, coconut oil, butter, lard, in fact any animal fats, cocoa butter, olive oil or macadamia oil. The first six are saturated fats, the other two mono-unsaturated fats. The best is the MCT oil, an extract from coconut oil. The body converts the fatty acid into ketones, in fact the brain does better on these than glucose. MCT oil forms ketones more efficiently than the other oils. The diet varies from a 4:1 ratio of fat to protein/carb for epilepsy, down to a 1:1 ratio for health and weight loss. This is obviously the easier to follow. You could look through the Stanford University Ketogenic Diet Meal Planner. I find it a nightmare to use! But as you have a child with epilepsy they will probably help you understand it. The hospital responsible for doing most of the research is the John Hopkins. The diet has been used since the 1920's, these are some papers here, here here. I wish we were making the Vitamin D cream, but there have been too many other things on our plate. We're trying to keep up with the demand for our progesterone cream. We've been having many stock outs recently which hasn't done my blood pressure any good! I know nothing about the Now cream, but avoid extra vitamin A as it blocks the uptake of vitamin D, which is more likely to be low than the A. It would be best to get a blood test done for her vitamin D levels. You can give it to her orally, but there are other vitamin D creams on the market if you prefer. Look out for vitamin A and the preservatives parabens or phenoxyethanol. We also have a page on Anxiety. Take care Wray
Dec 14, 2014
 Thank you Wray!
by: Hope

Wray, as far as the ketogenic diet for my daughter...she can only eat pureed, thickened food and liquids. Already looked into it once and couldn't see how it would be possible for her. Thank you for the nice compliment on caring for my angel. I wouldn't have it any other way. If she had been put in a home I doubt if she would still "be here" and if she was she would probably be on a feeding tube & trache!
As far as me and my anxiety & depression, I need to tell you that I've been on klonopin for 20 some years and I know it's harming me more now than helping! At first it was like a miracle for me but as the years have passed I think it has become more of a "nightmare"!! I know I am having "tolerance withdrawals" on a continual basis! I have to be careful about how much progesterone cream I use because it can cause w/d symptoms, however, without the cream my anxiety symptoms are so much worse! Do you think that if I continue with the "P" cream that eventually it may help me to be able to wean down on the "K"? Every time I try to wean down I end up back on the same dose (3mgs/day) because the w/d's are so extreme and debilitating! Also want to know if using "P" cream on my face can help with actinic keratosis??
Back to my "angel"...How much cream do you think I should use on her, how often and should I stop on day 28 for her period and then start back up five days later or just use it continually with her since it's for seizure control & severe brain damage due to a TBI? I'm also hoping, praying that it will help with her spacticity and contractures!
Thanks Wray!! God Bless! Sincerely, Hope
Dec 22, 2014
 Thank you Wray!
by: Wray

Hi Hope I should have known you would have looked into the keto diet. You could try adding more MCT oil to her food, it mixes well. Klonopin is a benzo, the hardest of all drugs to get off. Far worse than heroin or cocaine, far worse. They should be banned! The benzos affect the GABA receptor sites, so too does progesterone. I would have to know what your withdrawal symptoms are, but it could be you are experiencing Oestrogen Dominance. The "extreme and debilitating" sound just like oestrogen dominance! I have known a few who have found progesterone benefit them while on benzos, but I can't say whether it will help you or that you will be able to wean off the drug. I certainly think it's worth trying. Progesterone and vitamin D both stop cellular proliferation, beneficially affect the way genes express themselves, and moisturise the skin, so it certainly seems worth trying them. As for your daughter I can't really say. I suggest using 50mg/day to begin with and see how she gets on. You might need more but it's impossible to tell unless you experiment. If she reacts badly, then she is suffering from oestrogen dominance too, and more would be required to overcome the adverse symptoms. Not until you use 400mg/day does the period stop coming, some women need more to stop it. So it won't harm to use it daily. Take care Wray

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